Chemo Round 2

 We are settled in and waiting for Chemo Round 2 to begin. Because Daddy was so sick, Mommy brought her to the hospital alone this morning. It went well until we realized that Mommy can only pull the wagon and the suitcase...not carry Millie too. I gave her the choice to walk or ride in the wagon. She was loudly insisting I should carry her throughout the parking garage and into the foyer. Finally I got her distracted looking for the elevator button. She had no problem physically walking, but maybe she had some dread of coming back for another stay. Thankfully the staff at Children’s is so accommodating to our little bear

She came in demanding a plate of pancakes. Guess she was “Hangry”!?! She ate a huge breakfast and is settled down watching PBS.

((We had to wear jackets this morning. It was chilly...in July?!!!)

"Your story is not my story"

 Little Man sums it up in this peek into our day...

Everyone is still feeling bad, fevers, etc. To top that off momma (me!) had to find a dr today for a bad bladder infection. I’ve been trying to ignore it and care for her, but couldn’t take the discomfort any longer.

Tomorrow morning we check in for Round 2 of Chemo. A dear friend who lost his son during round 2 some years ago reminded me “your story is not my story”. Something I need to hear and be reminded of often as each new thing stretches our faith. Friends have no doubts, though we KNOW GOD CAN...we are praying he does!

Praises:

the availability of medicine for all of us sicklings.

Insurance that pays for most of these expenses (deductible met!)

Prayer:

That Millie tolerates Round 2 as well as she did round 1.

No complications

Blood counts to rebound quickly

Thank you for praying! Your daily prayers and our FAITH in God is what carries us when we are weak. When we have doubts about the future I’m reminded that you are interceding for us.

I will hold daddy's hand

 After we got to clinic this morning Millie developed a fever of 101. We got the standard treatment and are headed home. They are pushing Chemo off until Wednesday of this week. So much info about future treatment plans

...chemo

...surgery

...bone marrow transplant x2

This year will be a day by day walk of faith for our family. Thank you for praying us through it!

Praises:

fever waited until we were in clinic

Today Millie has felt well.

Her blood counts were excellent!

Prayer:

Daddy and brother now are feeling like Millie felt Saturday. We all need to be healthy to care for her. Pray no one else in our big house full gets it.

Millie asked “Does Daddy like medicine? I’ll hold his hand”. This is huge for her as every dose of her medicine she says “Don’t like medicine mom!”

Two of Millie’s sisters are on a mission trip cross country. Pray safety over them.

Fevering...

 I know many of you are waiting for Millie’s update. She woke this morning feeling better. Ate a little, still rested a lot. This evening she started running a low grade fever. Protocol is we go to the hospital at 101 degrees. She’s been up and down since 5, but has yet to hit 101.

Praises:

No pain today

we had time to get ready for our hospital stay without rushing

Praying:

Her temperature needs to stay down tonight.

Her pre-chemo appointment and stem cell transplant meeting is tomorrow. Pray for us to have clarity as we ask questions.

Give peace and remove fear as we head into round 2 of Chemo.

Millie and her buddy Mr

Jason

enjoyed playing with his phone.

Good Morning Mom!

 Millie has had a full and busy day today. She started off by getting out of bed saying “Good morning mom! How are you?” Always so big, I have said this to her for months now and she always parrots it back. Now she says it unprompted. Next, she discovered that daddy had the day off and was still in bed...she promptly climbed on his back to cuddle.

After nap it was time to chore the animals. Millie lives on a farm with cows, a horse, rabbits, and cats. We all took turns loving on Buster, our horse. Then we went out to feed the heifer. Next, we went to play with the rabbits. About that time 3 different carloads of people came to visit. Friends and family...a fun night!

Millie's first 'Ring Pop"

 

Millie’s up and going strong today. She got a fun box in the mail and enjoyed the new toys and sharing “ring pops” with her siblings. Guess I had never introduced her to those

Praises:

Millie’s lab work came back fantastic for her. In 6 days her platelets have risen from 44,000 to 144,000 on their own!

Her hemoglobin has come up too.

Prayer:

still constipated. (Thank you all for suggestions). We have a medicine that is working, but’s she’s trying so hard to not go we need movement tonight.

miraculous healing

Thank you for continuing to walk this journey with us. For bring us meals, sending her fun things, serving, loving, but most importantly PRAYING. #powerinprayer #togetherwearestrong #milliesmiracle

+4

Katherine and Millie - Sisters

 I love seeing Millie enjoying her siblings.

praises that Millie is eating lots!

still no pain meds needed!!

Pray:

She needs to drink...lots!

constipation. The tumor presses on her bowels causing problems.

For each person in our family, especially the brothers and sisters as we all process this differently.

May everything our family says and does bring honor to our Heavenly Father, Christ Jesus. Let us fix our eyes on Jesus, the author and perfecter of our faith.... Consider him...so that you will not grow weary and lose heart. Hebrews 12:2